PBC Daily Digest

Subscribe at:   PBCersdigest@pbcers.groups.io  For Patients ONLY.

Click the Join button and follow the instructions. After subscribing you will receive an e-mail with a membership information request and confirmation of your request to join. Click reply on the e-mail and click send. After we receive the confirmation email and membership info request you will be approved to join. You will then receive the PBCers Digest Welcome Letter and the next PBC Digest that is sent out.

Subscribe through e-mail:
Send a blank e-mail to  PBCersdigest+subscribe@pbcers.groups.io  Click reply to the groups.io confirmation e-mail and a membership information request email. After those steps are completed you will be approved to join. You will then receive the PBCers Digest Welcome Letter and the next PBC Digest that is sent out.

Because of spamming software, some ISP’s will not allow mail from Groups.io. If you do not receive the welcome letter within 24 hours, this usually means your ISP is not forwarding the mail or it is going to your spam folder. America Online members add the group mailing address PBCersdigest@pbcers.groups.io to your AOL address book.

PBC Daily Digest Rules: By joining the PBCers Digest, you agree to follow our posting rules.

The PBCers Digest is a moderated group.  All e-mails sent to our group address PBCersdigest@groups.io) must be approved by one of our moderators.

All members are expected to follow these rules or are subject to removal of post and/or banning from the group.

Size of e-mails:  E-mails posted to the group must be less than 400 words. If your e-mail is more than 400 words, please split it into two e-mails.  E-mails over the word limit will be rejected.

Mailing format: We ask our members to receive the PBCers Digest in digest format. This is the format we have used for years, and all new members are changed to digest format. If you receive individual e-mails, please do not reply to postings until they have been sent out to all members in the digest.

Replies to the group: Make sure your reply applies to the topic or start a new topic discussion.  One topic per post makes it easier to search for other similar discussions.

Be kind & gentle: We already have enough problems trying to cope with the diagnosis and daily living of PBC. We don’t need bickering in the digest adding additional stress. We are here to offer caring help and support to one another.

Private e-mails to other members: If you do not agree with a posting in the digest, please do NOT reply to their personal e-mail address unless they request private e-mails. If your reply can’t be posted to the group, then it most likely should NOT be sent at all. Sending an argumentative or tacky e-mail to a member’s private e-mail address is grounds for removal from our group.

Upper case text:  Please do NOT type your e-mails in all uppercase text.  ALL CAPS is considered shouting in cyberspace language and is hard on the reader’s eyes.

Copyright and trademarked material CANNOT be posted in the digest, chatroom, message board, extension mailing lists or elsewhere.  If a member finds an interesting “PBC related” article, they can post the link, title and few sentences of the article. Members can use the link posted to read the complete article.  Please send in PBC related links only.

We do not discuss politics or religion.  We are a diverse group consisting of members around the world. Our organization is here to offer help and support for PBC, associated diseases, day-to-day living, treatments, research, insurance, fundraising and other PBC related topics.

We do not discuss race or sexual preferences.

No slamming of other members.

No advertising or group member mailing without the PBCers Executive Committee’s approval.  We ask members not to collect e-mail addresses from the PBCers Digest and use this information to send out spam mail.  Group mailings to our members without prior approval is considered spamming, and the person will be removed from the PBCers group immediately.  We all receive enough e-mail in our mailboxes, and don’t need our digest members adding to the problem.

PBCers Organization promotes “Facebook” fundraisers such as Birthday & Anniversary.  PBCers Organization does NOT promote other fundraisers such as “Go Fund Me” or individual fundraisers collecting their own funds. We can’t sponsor or promote these type fundraisers as we have no control over money collected or how much is actually donated. These type fundraisers must be done by the individual and then money donated to PBCers Organization from the individual listing the fundraiser.

No vulgarity or offensive language.

Moderators have the option “not to approve” an e-mail they consider in violation with any of the above posting rules.

Moderators can “reject a new member subscribe” and “remove a member” they feel is disruptive to our group.

Please sign your e-mails.  You do not have to use your last name, but it is helpful to give your first name. Some members also include their state/country, disease stage and diagnosis year. Example:  Jane, La, Stage 1, Dx 2004 (For safety reasons, please no cities or phone numbers.)  Groups.io provides a place to create “your signature” in your profile so it can automatically be added to your posts.

The PBCers Organization offers help and support to all PBC patients, family members, friends and others wanting to learn more about PBC.  PBCers Digest is for PATIENTS ONLY so we can freely and safely discuss topics that we may not want to share with people outside this group.

How to change your mailing address:
At groups.io in your profile you can change your email address.   Do not resubscribe with a new email address.

To unsubscribe from the PBC Daily Digest:
Send a blank e-mail to PBCersdigest+unsubscribe@pbcers.groups.io
Be sure to click reply to the confirmation e-mail. Confirmation removes your address from our mailing list.

Group Email Addresses

The medical articles and website locations shared on this site are for information purposes ONLY and NOT to be used as medical advice. We do not take responsibility for information or links to these sites.

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